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This is an opportunity to explore the difficulties that can be associated with caring for a person with Juvenile Huntington's disease.
We are pleased to invite you to our virtual course for parents and family carers of people living with Juvenile Huntington’s disease. This eight-week course will be run by Sarah Gunn, a clinical psychologist and researcher at the University of Leicester, and will be based on the principles of Acceptance and Commitment Therapy.
What is Acceptance and Commitment Therapy?
Acceptance and Commitment Therapy is a therapeutic approach which focuses on learning to manage difficult thoughts and feelings, and to live a life which feels valuable and meaningful despite the struggles we encounter.
This is an opportunity to explore the difficulties that can be associated with caring for a person with JHD (for you and within the family), to identify the values that matter most to you, and for you to think about how to move towards a more rich and valued life than you may have now.
Course information
This is an eight-week course running from Wednesday 7 February to Wednesday 27 March 2024.
The sessions will be on a Wednesday afternoon 1.00pm-2.30pm.
Brief session outline:
Week one: Introductions: To ACT, to the programme, and to each other
Week two: Impacts of Juvenile Huntington’s on the “carer”* and wider family
Week three: Psychological wellbeing when supporting a person with Juvenile Huntington’s
Week four: Coping and adjustment: Living with, not battling against
Week five: What matters to you: Finding your values
Week six: Moving forward: Taking steps to align with your values
Week seven: Living a valued life alongside Huntington’s: Plans and coping strategies
Week eight: Reflection and ending: What’s next?
*Note: Some people don’t like this term, so here we’re using it in quote marks. During the course, we will discuss which term would be preferred by the people attending.