London marathon 2026
Running events
If you have an adult child who is at risk of Huntington's, you can find out what support is available.
We are pleased to invite you to our virtual course for parents of adult children at risk/pre manifest. This is an opportunity to improve your knowledge of the issues surrounding your adult child at risk, share your experiences and gain ideas of support available for yourself and your adult child. This is a 5 week course running from Thursday 24 April 2025 7pm - 8.30pm until Thursday 22 May.
Course outline
Week one – Thursday 24 April
Welcome and overview of support available from the Huntington's Disease Association:
Speaker: James O’Connor, Team leader - Huntington's Disease Youth Engagement Service, Huntington's Disease Association
Week two – Thursday 1 May
Genetics: How to access testing, the process and family planning options.
Speaker: Chris Platt, Specialist Huntington's Disease Adviser, Huntington's Disease Association
Week three – Thursday 8 May
Research update, what next and Enroll.
Speaker: Ruth Fullam Regional Director for Enroll HD
Week four – Thursday 15 May
Finances and planning ahead.
Speaker: Steve and Melanie Parsons from Safe Guarding Futures.
Week five – Thursday 22 May
Reflection on the course and the way forward.
Speaker: Anne Filson, Team leader, Huntington's Disease Association.
Please note that this event is for UK residents only.