Date
4 Apr 2025 - 25 Apr 2025
Helpline:
Date
4 Apr 2025 - 25 Apr 2025
Time
10:00am - 11:30am
Location
Online
We have an exciting and informative course which provides techniques to support your child and an opportunity to meet other parents in similar situations. This is an opportunity to improve your knowledge of the issues surrounding your child at-risk, share your experiences and gain ideas of support available for yourself and your child.
This four-week course includes talks from professionals actively working in the area of specialism, opportunities to ask questions, share experiences and learn from each other. The course is for parents with children who are under the age of 18 and at risk of Huntington's disease.
This course will run from Friday 4 April until Friday 25 April. Please note week three will run on a Thursday due to the Bank Holiday. There will be the opportunity to join a follow up WhatsApp group with other parents.
Week 3 – Thursday 17 April 10.00-11.30am - Talking about Huntington’s disease as a family - Speaker - Alison Metcalfe Week 4 – Friday 25 April 10.00-11.30am - Positive activities for families (with techniques and ideas from NAPPI training) - Speaker - Anne Filson
Week one - Friday 4 April
The Huntington's Disease Association services and support
James O'Connor
Week two - Friday 11 April
Research update
Lauren Byrne
Week three - Thursday 17 April
Talking about Huntington's disease as a family
Alison Metcalfe
Week four - Friday 26 April
Positive activities for families (with techniques and ideas from NAPPI training)
Anne Filson