Would you like to learn more about how to support your child living in a family with Huntington’s?


We have an exciting and informative course which provides techniques to support your child and an opportunity to meet other parents in similar situations. This is an opportunity to improve your knowledge of the issues surrounding your child at-risk, share your experiences and gain ideas of support available for yourself and your child. 

This four-week course includes talks from professionals actively working in the area of specialism, opportunities to ask questions, share experiences and learn from each other. The course is for parents with children who are under the age of 18 and at risk of Huntington's disease.

This course will run from Friday 4 April until Friday 25 April. Please note week three will run on a Thursday due to the Bank Holiday. There will be the opportunity to join a follow up WhatsApp group with other parents.

Register here


 Week 3 – Thursday 17 April 10.00-11.30am - Talking about Huntington’s disease as a family - Speaker - Alison Metcalfe Week 4 – Friday 25 April 10.00-11.30am - Positive activities for families (with techniques and ideas from NAPPI training) - Speaker - Anne Filson

Course outline

Week one - Friday 4 April

The Huntington's Disease Association services and support

James O'Connor

Week two - Friday 11 April 

Research update

Lauren Byrne

Week three - Thursday 17 April

Talking about Huntington's disease as a family

Alison Metcalfe

Week four - Friday 26 April

Positive activities for families (with techniques and ideas from NAPPI training)

Anne Filson


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