Our Juvenile Huntington's disease family weekend is for children or young people affected by Juvenile Huntington's disease and their families.

Our Juvenile Huntington's disease family weekend is an annual weekend away open to children, teenagers and young adults affected by Juvenile Huntington's, their parents and any siblings.

The weekend consists of a range of family activities and an individual programme offered for those with Juvenile Huntington's disease and any children or siblings and a separate programme for the parents and carers.

This year, the weekend will be taking place on either 29 May - 31 May 2026 (2 nights - leaving after Sunday lunch) or 29 May - 01 June 2026 (3 nights - leaving after Monday breakfast with an additional activity Sunday afternoon). You can state your preference on our booking form.

The closing date for bookings is Friday 27 February 2026, and bookings may not be taken after this date.

Places are limited and will be allocated on a first come, first served basis so please book early to avoid disappointment.

Click for booking form

If you have any queries about the weekend or want to know more about what happens, please contact Helen Santini on 01279 507656 or helen.santini@hda.org.uk 

Juvenile Huntington's disease family weekend 2025

Carers, Community stories

Read more

Juvenile Huntington's disease family weekend 2024

Support, Youth engagement service

Read more

Juvenile Huntington's disease family weekend 2023

Support

Read more

Juvenile Huntington’s disease family weekend

Support

Read more