Fully Booked
Join us at our in-person Huntington's disease Community Conference and AGM.
This event is now sold out.
Hear from acclaimed speakers and connect with and learn from other members of the Huntington community. This year's conference will take place across two days with the AGM and community conference taking place on the Saturday and interactive workshops taking place on the Sunday. There is the option to join for one or both days and also the option for an overnight stay.
Saturday 1 November 2025
We will be joined by a number of speakers in the Huntington's community, some sharing personal stories and others with their knowledge of care, support, and research.
In the evening, we will join together for a three-course dinner and disco which will take place in Crewe Hall's spectacular Long Gallery which dates back to Jacobean times.
Children and young people attending (up to 17 years) will have the option to join off-site activities with our Specialist Youth Engagement team. In previous years, these have included activities such as bowling, laser quest, escape rooms and theme parks.
Sunday 2 November
We will be running smaller more interactive workshops that you choose from. In previous years, these have included a range of topics such as relaxation techniques, reflexology, psychological strategies and preparing for the future.
Children and young people will join our Specialist Youth Workers for further activities on-site. In previous years, these have included swimming, film morning and arts and crafts.
Is this event for you?
This event is for everyone affected by Huntington’s disease, whether family, friends, individuals or professional to come together to understand more about the disease.
How to book
This event is now sold out.
The venue
This year, in the return of our in-person community conference and annual general meeting, we will be hosting the event in the beautiful Crewe Hall.
Picturesque location
Accessible and family rooms
Restaurant catering
Historic venue
Meet the speakers at this year's Huntington's community conference
Professionals, Support, Carers, Young adults
Thank you to our sponsors
Thank you to our sponsors who have helped make this event happen.
Roche Products provided a grant to support the logistics of this conference but had no input or influence on any of the content.
Annual General Meeting
Formal notice of the Annual General Meeting can be found below.
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Take a look at last year's AGM
