Would you like to share your experiences?
The power of lived experiences is invaluable.
How sharing your story can make a difference
Whether you are living with Huntington’s disease, caring for someone affected, fundraising or volunteering for us, have used our services or attended one of our events, your experience matters.
Sharing your story can:
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Help raise awareness and understanding of Huntington’s disease
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Challenge stigma and change how people think and talk about the condition
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Highlight the support and resources available to families and individuals
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Inspire others to fundraise, volunteer, or campaign on behalf of the Huntington’s community
- Empowers you to talk about Huntington's disease
By sharing your experiences, you can help ensure that other people in our community feel less alone. Lived experiences help the public as well as policy and decision makers see what life is like for people affected by Huntington's disease and the impact of the support we offer.
How are stories shared
Your story could be used in a range of ways. Some go out on social media, others on the website in the form of a blog and sometimes a quite may be use on a webpage, event or funding bid. If your story is suitable for a press request, we may also contact you about this too. It is also possible that we won't be able to use every story for various reasons.
How to share
To share your experience with us you will need to fill out the form below. Please ensure you have permission from everyone in your story, or, pleaser keep them anonymous. All pictures used to support your story need to have signed photo consent (a form will be sent to you after filling out the form).
By sharing my story, hopefully with the life experience I have, I can pass on advice to the younger generations and those going through a similar situation as me.
