A study aiming to develop Huntington's disease-specific quality of life tools.


Galen Research Limited has partnered with the NHS to develop a questionnaire about quality of life.

 

About the study

Are you a partner of somebody living with Huntington’s disease? Are you interested in contributing to research? We are looking for people like you to complete a quality-of-life questionnaire on two occasions.

Download the flyer

Or

Have you had a predictive test for Huntington's disease, tested positive and are currently well? Are you interested in contributing to research? We are looking for people like you to complete a quality-of-life questionnaire on two occasions.

Download the flyer

Or

Are you a partner of somebody who has tested gene-positive for Huntington’s disease? We would like your views on a Quality of Life questionnaire we are developing. We are hoping to speak to partners of someone who has had a predictive test for Huntington’s disease, tested positive, and is currently well.

Download the flyer

The questions have been created from talking to partners of people living with Huntington’s disease across Europe.

 

How to get involved

For more information or to sign up please call 0161 701 9136 or email genetics.research@mft.nhs.uk

The questionnaire will be posted to you with a return stamped envelope.

 

This study closes on 1 September 2025.