Invite your MP to the launch of our Care Coordination report at Portcullis House, Westminster
To ensure that as many MPs as possible attend our launch, we’re asking the community to copy and paste the following template and email your local MP:
Subject: Invitation from your constituent - Huntington's Disease Association drop-in report launch - Tuesday 19 May 2026, 2pm-4pm
Dear [NAME OF MP]
I am writing to you as your constituent and as someone affected by Huntington's disease.
I would love for you to join us at the parliamentary launch of our new report, Support at every step: Improving care coordination for people living with Huntington's disease, and I hope you'll be able to represent me at this event.
When and where
Tuesday 19 May 2026, 2pm-4pm (drop-in)
Room Q, Portcullis House
Why this matters
Around 8,000 people in the UK are living with Huntington's disease, and a further 32,000 are at risk due to its hereditary nature, meaning most MPs will have constituents with a direct family connection to this condition.
Symptoms of Huntington's disease vary widely between people. However, changes usually affect three main areas: thinking (difficulties with memory and cognition, such as planning), movement (movements may happen that you do not expect, while doing what you want to do becomes more difficult) and behaviour (changes in mood and personality). It requires complex, multi-disciplinary care spanning physiotherapy, occupational therapy, speech and language therapy, mental health and social care. Yet many people are left to coordinate this themselves, on top of managing a progressive and demanding condition.
Our report sets out the case for a dedicated single point of contact for people living with Huntington's; someone who understands their needs and can help them navigate the services they're entitled to. This straightforward intervention can reduce pressure on the NHS while transforming patient outcomes and the experiences of their families.
What we'll provide after the event
To help you highlight your support locally, we'll send you a photograph from the event, a ready-to-use press release, and social media content to help you share your support with your constituents.
I do hope you're able to attend, even for a brief time. Please do get in touch with Darren Rutland, Policy and Public Affairs Officer at the Huntington's Disease Association, via darren.rutland@hda.org.uk if you have any questions.
I look forward to hearing from you.
Yours sincerely
[NAME AND ADDRESS]
We ask that you include the name of your MP as well as your own name and address in the email, so the MP and their team know that you are their constituent. This may increase the likelihood of their attendance.
Thank you