There is very little research into how people with Huntington's disease are affected by changes or problems with sex and intimacy, and healthcare providers don’t often talk about these challenges.
Huntington's disease: Sex and Intimacy
University of Leicester
About the study:
This study aims to address gaps in sex and intimacy research through recorded interviews, which will provide a platform for people with the Huntington’s disease expansion to voice their difficulties, and to raise awareness amongst healthcare services.
Who can take part:
Adults aged 18 and over with the Huntington's disease gene expansion (whether symptomatic or not).
How to get involved:
Rob will then email you back with further information, and will arrange an interview by your preferred method (face to face, remotely, over the telephone, via text or email communication).
You will receive a £20 payment via bank transfer as a thank you for your participation.
Study is open until 31 December 2025.
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