We are joining organisations across the neurological community to shine a spotlight on the mental health impact of neurological conditions on children and young people.
Around one in six people in the UK have at least one neurological condition with an estimated 600,000 people diagnosed each year. A recent study found that neurological conditions are now the leading cause of ill health worldwide. These conditions do not discriminate; they can affect anyone, at any age, at any time.
Many children and young people live with a neurological condition, and lots more have family members impacted by these complex and life-changing conditions. Mental health is as important to physical health when enabling people to live their best lives. Neurological conditions can co-occur with anxiety, depression, behavioural change, attentional challenges, sleep disturbance and more. Access to limited vocabulary can also inhibit expression of feelings. For children living with neurological conditions in the family, many take on caring roles without identifying as a young carer. Too often, access to mental health support for families impacted by neurological conditions is inadequate.
That’s why, this Brain Awareness Week, we are calling on teachers, health professionals, social workers, and anyone supporting children and young people to take action. #DontAssumeImOk urges professionals to understand how neurological conditions shape daily life and emotional wellbeing, and to take proactive steps to ensure every young person feels seen, heard, and supported.
Throughout the week, we will be sharing powerful stories from young people and their loved ones, infographics, and a practical downloadable toolkit designed to help professionals recognise the signs, start conversations, and respond confidently when a young person needs support.
Here's how you can help:
- Share our infographics and stories from people affected by neurological conditions throughout Brain Awareness Week.
- Join the conversation on social media using #DontAssumeImOk #BrainAwarenessWeek
- Share the toolkit with your networks!
If you know of young people who are affected by Huntington's disease, you can get in touch with our youth service.
Thank you.
Watch this video to find out more about the importance of connection and community for young people:




