Welsh Government: People with Huntington’s disease must not be excluded from mental health services
The Welsh Government has published its Quality Statement for Mental Health
We’re delighted to share that the Welsh Government has published its Quality Statement for Mental Health, which defines the outcomes and standards that mental health services must deliver.
The Statement makes clear that people with Huntington’s disease should not be excluded from mental health services. We’ve worked with NHS Wales and Members of the Welsh Parliament/Senedd to help make this happen.
Earlier this month, Mark Isherwood MS made a statement in the Senedd, highlighting the need for people with Huntington’s disease to have better access to mental health services.
It’s the latest success in our ‘Huntington’s in Mind’ campaign to ensure that people with the condition can get the mental health support they need. In April 2025, NHS England updated its guidance to make clear that people living with Huntington’s disease should not be excluded from mental health services. This followed the publication of our mental health report (Unseen and Unheard) in 2024. Almost a third (29%) of people we surveyed said they or their relative were denied access to mental health services because of having Huntington's disease.
Welsh Government: Quality Statement for Mental Health
The relevant text below has been taken from the statement. You can read and download the full version on the link at the bottom of the page.
Planning expectations for the delivery of mental health services in Wales
“…Services will be designed and delivered using an intersectional approach that actively considers how overlapping experiences of identity, discrimination, and disadvantage shape people’s mental health, access to care, and outcomes. People with physical health diagnosis, neurodivergent conditions (for example autism or ADHD) or neurological diagnosis (for example Huntington’s disease, Parkinson’s or Dementia) will not be excluded from services”.