Parliamentary event 2025
Awareness, Campaigning, Professionals
Garnering support from MPs across England and Wales.
In November 2025, we organised a Parliamentary event to raise awareness of Huntington's disease. We invited MPs from up and down the country in order to inform them about Huntington's disease and the needs of our community. A total of 27 MPs attended in person with a further nine sending a member of staff on their behalf. We were delighted by the turnout and the real interest that so many MPs showed in Huntington's disease.
22 MPs signed our pledge cards with their promise to support the Huntington's community and support the Huntington's Disease Association with our campaigning.
Meet our Huntington's Disease Champions
Andrew George
St Ives, Liberal Democrats
Adrian Ramsay
Waveney Valley, Green Party
Anna Turley
Redcar, Labour
Baggy Shanker
Derby South, Labour
Ben Lake
Ceredigion Preseli, Plaid Cymru
Carolyn Harris
Neath and Swansea East, Labour
Claire Hazelgrove
Filton and Bradley Stoke, Labour
Danny Chambers
Winchester, Liberal Democrats
Ellie Chowns
North Herefordshire, Green Party
Gareth Thomas
Harrow West, Labour
Sir Gavin Williamson
Stone, Great Wyrley and Penkridge, Conservative
Helen Maguire
Epsom and Ewell, Liberal Democrats
Julie Minns
Carlisle, Labour
Justin Madders
Ellesmere Port and Bromborough, Labour
Kirsteen Sullivan
Bathgate and Linlithgow, Labour
Lauren Edwards
Rochester and Strood, Labour
Mary Glindon
Newcastle upon Tyne East and Wallsend, Labour
Martin Vickers
Brigg and Immingham, Conservative
Manuela Perteghella
Stratford-on-Avon, Liberal Democrats
Paul Davies
Colne Valley, Labour
Samantha Niblett
South Derbyshire, Labour
Stephen Doughty
Cardiff South and Penarth, Labour
Vikki Slade
Mid Dorset and North Poole, Liberal Democrats
Community involvement
The event was such a success because of the hard work our Policy and Public Affairs team put into organising it and lobbying MPs. They invited every MP from every constituency in England and Wales, sending each one specific information for their area.
It could also not have been done without the help of our community. Thank you to everyone who wrote to their MP and for those who attended to represent the charity. Our aim is to have Huntington's Disease Champions in as many constituencies as possible. If you can't see an MP from your area and you are happy to contact them, please email darren.rutland@hda.org.uk for information about how MPs can become Huntington's Disease Champions.
A special thank you
We would like to thank all the other MPs who took the time out of their day to come and join us at this event or who had a member of staff representing them on their behalf.
Alex Brewer, North East Hampshire, Liberal Democrats, Anneliese Midgley, Knowsley, Labour, Amanda Hack, North West Leicestershire, Labour, Adam Thompson, Erewash, Labour, Cameron Thomas, Tewkesbury, Liberal Democrats, Joy Morrissey, Beaconsfield, Conservative, Jim Dickson, Dartford, Labour, Rushanara Ali, Bethnal Green and Stepney, Labour, Monica Harding, Esher and Walton, Liberal Democrats, Sir Roger Gale, Herne Bay and Sandwich, Conservative, Sir Stephen Timms, East Ham, Minister of State for Social Security and Disability, Labour, Steve Race, Exeter, Labour Toby Perkins, Chesterfield, Labour.
We would like to add an extra thank you to Helen Maguire MP for sponsoring the event and enabling it to take place.
We also want to say a big thank you to our sponsors, Wave Life Sciences and Ferrer.
The work of our Huntington's Disease Champions
Martin Vickers MP mentioned our Parliamentary Reception in the House of Commons. He highlighted the need to ensure implementation of NICE guidelines which recommends a single point of contact for people with Huntington's disease. Thank you for your support Martin.
