Support in the East of England

We are here to support you whether you are looking for peer support or advice from a professional. Below you can find out more about our Specialist Huntington's Disease Advisers and local branch and support groups.

Specialist Huntington's Disease Advisers

Our specialist advisers are experienced and compassionate care management professionals. 

They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.

Our Specialist Huntington’s Disease Advisers can help by:

• providing a listening ear, advice and emotional support
• delivering our confidential telephone helpline service
• communicating with medical, health and social care professionals
• working with specialist Huntington’s disease clinics
• advocating for the person with Huntington’s disease to get the best support
• organising and attending local support networks and carers’ group meetings
• providing information resources on symptoms and how to manage them
• connecting younger family members with our Youth Engagement Service - HDYES
• giving support for sensitive end-of-life care
• educating medical, health and social care professionals

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Branch and support groups

You can click on each branch and support group to find out more about the groups and where they meet. If you can't see one in your area and you are thinking about setting one up, please email branch@hda.org.uk and we can support you in doing this.