This year's theme was Behind the Gene.
The invisible challenges and untold stories of Huntington’s disease.
This May, we showed the many faces and many lives behind Huntington's disease.
Too often, people affected by Huntington's disease find themselves educating the public about their condition.
Not everyone has heard of Huntington’s disease, and that includes healthcare professionals. A staggering 85% of 150 people asked in a recent survey had to educate a doctor, nurse or healthcare professional about Huntington’s disease. This is just one of the many challenges the Huntington’s community faces. We are trying to change this.
What we achieved
How our community got involved
We created healthcare professional factsheets and reached out to the community to help spread them far and wide. 25 people registered to distribute factsheets in healthcare setting and below you can see the areas that were covered. For our next awareness month we are going to try and fill the map!
