Share your story

There may be times you might feel like you’re the only person living with Huntington’s disease. Or that no one else has had to go through the things you’ve experienced.

But having worked with families for over 30 years, we know you’re not alone.

There are other people who have had similar feelings and experiences.

Can you use yours to help others?

By sharing your story and experiences, you can directly help people who are contacting the HDA in a time of need.

You can also help people who haven’t heard of Huntington’s to get a better understanding of what it’s like to live with the disease.

To find out how to take part please email [email protected]

Take a look at some of the stories shared by others