There are so many deserving fundraisers within the Huntington's community who have gone above and beyond to raise valuable funds and awareness to support those affected by Huntington's. 

The Huntington’s Disease Association Awards are our annual opportunity to recognise and celebrate the outstanding achievements of those who support our work, and those who support people affected by Huntington’s disease. This year’s nominees have been selected in recognition of their exceptional commitment to fundraising over the past year.

We would like to thank our event sponsor, FI Real Estate Management. You can read more about them at the bottom of the page.

Voting is open until 09:00am on Monday 09 March 2026

Excellence in Health or Social Care Award

The Excellence in Health or Social Care Award recognises those who have made a meaningful difference to the lives of people affected by Huntington’s disease over the past year.

This category is open to individuals, teams, or organisations who champion the Huntington’s disease community, provide support, and help people live better lives.

Tell us who you believe deserves this award by completing the form below by 09:00am on Monday 09 March 2026.

Submit your nomination here

Fundraiser of the year

Amber Jones – “Miles for Mum” half-marathon

In the summer of 2025, Amber, from Somerset, hosted a ‘Miles for Mum’ half-marathon run club to raise money for the Huntington’s Disease Association.

“The event was held in July to honour my mum’s 50th birthday, celebrating 50 years of her being well, while also acknowledging her Huntington’s diagnosis. The run was also a personal challenge, as Huntington’s may affect my own physical ability in the future, making the event especially meaningful.”

Graham Dobbs – 12 marathons in 12 months

In 2025, Graham, from West Yorkshire, took on the challenge of running 12 marathons in 12 months (one per calendar month) for the Huntington’s Disease Association.

“The Huntington’s Disease Association is a charity which I have a close connection to, so being able to turn miles into donations meant a huge amount to me. It became far more than a running challenge. It was an unforgettable journey, powered by the generosity of everyone who donated, shared and cheered me on.”

Hugo Brister – Kilimanjaro trek

During February 2025, Hugo, from London, travelled to Tanzania to begin his overseas challenge to raise funds for the Huntington’s Disease Association.

“I climbed Mount Kilimanjaro, the highest mountain in Africa and the highest single free-standing mountain above sea level in the world, scaling and descending 5,895m over seven days. Huntington’s disease runs in my family, so is very close to home. I took on and completed this climb in memory of my beautiful, wonderful and ever-loved granny, Eileen.”

Matthew Gibson – Ultra year

In 2025, Matthew, from North Lincolnshire, completed the 50k Ultra Marathon Grand Slam, consisting of three ultra-marathons. Alongside the Ultras, Matthew also completed the JOGLE Virtual Challenge, covering the equivalent distance from Land’s End to John O’Groats.

“Each of these challenges represents a significant physical and mental test, undertaken with the same purpose: to raise awareness, inspire support, and help any families affected by Huntington’s disease.”

Oliver Newton – Ironman 70.3

During May 2025, Oliver, from London, took part in the Ironman 70.3 in the South of France. The event involved a 2km swim, a 90km cycle through the mountains, and a half-marathon.

“Completing a half Ironman was my way of turning grief into purpose, pushing my limits to honour my aunt’s memory and to help fund support for families affected by Huntington’s disease.”

Vivienne Ayling – Garden party

In the summer of 2025, Vivienne organised a garden party to raise funds for the Huntington’s Disease Association.

“My husband and I belong to a choir, and we decided to do this garden party with our very dear friends and family. With a song theme in mind, we had an amazing evening full of music, singing, and laughter, along with spreading information about Huntington’s.”

Now that you’ve met our incredible nominees, cast your vote below.

Click to vote

Voting closes at 09:00am on Monday 09 March 2026.

Young fundraiser of the year

Archie McInnes – Christmas charity event

14-year-old Archie from Nottingham made the most of the festive season last year, when, together with his cousin, he organised a Christmas fair to raise funds and awareness of Huntington’s disease.

“Raising funds for Huntington’s means the whole world to me. Making my grandad proud is one of my biggest aims in life, and the event most certainly reached my aim.”

Bertie Hardie – Bake sale

Bertie, from Northumberland, was 13 when he decided to raise funds for the Huntington’s Disease Association. Last year, Bertie got baking and was determined to raise funds and awareness.

“I reached out to my mum’s workplace, who were incredibly supportive and kindly allowed me to run the sale in their office. I spent days baking a wide range of treats, and some of my mum’s colleagues also joined in by baking too.”

Manraj Kaur Sangha – Samosa sale

In April last year, Manraj, aged 16 from the West Midlands, decided to organise a fundraiser at her school.

“I held a samosa sale in my school. With the support of my dad and friends, I managed to sell 250 samosas and raise money for the Huntington’s Disease Association.”

Max Walters and Laureate Academy – Nuclear Rush weekend

A group of sixteen students and five members of staff from Laureate Academy in Hertfordshire decided to show their support to a fellow pupil last year by taking part in the Nuclear Rush weekend (a 12k obstacle course race). Sarah Dolling, Associate Assistant Principal, told us:

“The students worked extremely hard and really pushed themselves outside of their comfort zone to make this happen.”

Now that you’ve met our incredible nominees, cast your vote below.

Click to vote

Voting closes on at 09:00am on Monday 09 March 2026.

Fundraising group of the year

Daniel Smith - Lake District 24 Peaks Challenge

This group of old school friends from Wigan took on the Lake District 24 Peaks Challenge in June 2025. The challenge involved climbing 24 of the highest mountains in the Lake District over two days, covering 35 miles and 13,000 feet of ascent within 24 hours of walking time. Daniel told us:

“The challenge was incredibly hard and made even worse by the horrendous weather we had on Day 1. Despite us only finishing at 10:00pm after 15 hours of walking and climbing, the team were up and ready for Day 2 at 7:00am, where we had a much better day and finished to a surprise welcome back from family and friends.”

Ladies Who Dare - Trekking through the Himalayas

The Ladies Who Dare are a group of very special friends made up of Claire, Sam, Jess, Karen R, Karen B, Ceri, Fiona, Amanda, Lesley, Chris, Susanne, Jan, and Jane, who are determined to make a difference and to support the McLaughlan family. In April 2025, the Ladies Who Dare took on their most challenging fundraiser to date. For five days, they trekked through the foothills of the Himalayas and met with his holiness the Dalai Lama. Claire told us:

“What does it mean to us to support the Huntington’s Disease Association? Simply, we need to make that difference.”

Lara Payne and Rebecca Joesbury – South West Coast Ultra

Best friends Lara and Rebecca came together last August to show their support for their friend Lisa by completing the South West Coast 50km Ultra Challenge Trek. Lara told us:

“What began as a physical challenge quickly became an emotional journey, fuelled by love, determination, and a deep desire to support the Huntington’s Disease Association and everyone it stands for.”

Rachel Kelley and Hannah Kelson – 250-mile cycle

In July last year, Rachel Kelley and Hannah Kelson, friends from Cornwall, completed an incredible 250-mile cycle from Higgidy in Shoreham-by-Sea to Ginsters in Plymouth. Rachel told us:

“We’ve been able to raise awareness and important funds for Huntington’s disease, which has made it feel such a fantastic achievement.”

Tavistock Wheelers Cycling Club – Miles for Mark

Enthusiastic cyclists, the Tavistock Wheelers, decided to ride across Devon, Somerset, Wiltshire, and Berkshire to University College Hospital London during Huntington’s Disease awareness month last May. This epic journey, totalling 3,926 miles, involved 12 riders, over five days. Claire told us:

“It all began with a cyclist, Mark – a much-loved Tavistock Wheeler who was diagnosed with Huntington’s Disease in 2024. Mark’s mum had recently passed away with Huntington’s, and Mark had taken the difficult decision to be tested.”

Now that you’ve met our incredible nominees, cast your vote below.

Click to vote

Voting closes on at 09:00am on Monday 09 March 2026.

2026 awards sponsor

Thank you so much to FI Real Estate Management for being this year's event sponsor.

Tim Knowles, managing director, FI Real Estate Management said:

"FI are delighted to be sponsoring the Awards this year, and to show our support for the incredible services provided by the charity to people living with Huntington’s disease and helping them live a better life."

About FI Real Estate Management

As one of the UK’s most established names in commercial asset and property management, FI Real Estate Management operates an extensive and diverse portfolio which covers over 15m sq ft, including 6.5m sq ft of new build developments, across the nation, with assets totalling in excess £1.2bn.