Join us at our next in-person event for young adults aged 18 to 40!

Our Young person (18-40) in-person event will be held in London on Saturday 18 April 2026 from 11.30am until 4:30pm at the Phoenix Garden, 21 Stacey Street, Covent Garden, London WC2H 8DG.

The event is open to people aged 18–40 who are impacted by Huntington’s disease, including those who are at risk, have tested positive, have tested negative, and partners. It provides an opportunity to meet others who have Huntington’s disease in their family and to take part in supported discussions on key topics.

What the day will cover:

On the day, attendees will be joined by Sian Thompson, HR Manager at the Huntington’s Disease Association, who will lead a discussion on workplace support. This session will focus on the support you can expect from your employer and on talking about Huntington’s disease with employers and colleagues.

After lunch, there will be an update on current Huntington’s disease research.

Then, one of our Huntington's Disease Association Ambassadors will lead a discussion on talking about Huntington’s disease with friends, family members, and in social environments.

The main purpose of the day is to bring people together. Attendees are encouraged to take advantage of the Covent Garden location and continue meeting socially after the event has finished.

Further information:

For further information about the event, please contact anne.filson@hda.org.uk or nadia.laffey@hda.org.uk

To book your place:

Click here

Meet your hosts

Anne Filson - Advisory Service Team Leader

Anne is one of our Advisory Service Team Leaders at the Huntington's Disease Association. She will be available to share her knowledge on living with the disease and the support services we offer.

Nadia Laffey - Youth Engagement Project Officer

Nadia is a Project Officer with the Huntington’s Disease Youth Engagement Service (HDYES), supporting the delivery of youth programmes and events for families affected by Huntington’s disease.