Location
Online
We're pleased to invite you to a five-week virtual course for parents of adult children who are at risk of Huntington’s disease.
This course provides an opportunity to increase your understanding of the issues surrounding your adult child’s risk, share experiences with others, and explore the support available for both you and your family.
Please note that the first session only will take place from 1:00pm – 2:30pm. All subsequent sessions will run from 10.00–11.30am.
Course schedule and speakers:
Week one
Topic: HDA and HDYES: what support we can offer you and your family
Date: Friday 10 April, 1:00pm – 2:00pm
Speaker: James O’Connor, Team Leader – Huntington’s Disease Youth Engagement Service (HDYES) and Specialist Youth Worker (North)
James O'Connor leads the Huntington's Disease Association's Youth Engagement Service, and has extensive experience supporting families affected by Huntington's disease.
Week two
Topic: Research update in Huntington’s disease
Date: Friday 17 April, 10:00am – 11:30am
Speaker: Elizabeth Broom, PhD student within the Byrne Lab at UCL's Huntington's Disease Centre
Elizabeth Broom works in Huntington's disease research and will provide parents with an accessible update.
Week three
Topic: Genetics, Huntington's disease, and family planning
Date: Friday 24 April, 10:00am – 11:30am
Speaker: Chris Platt, Specialist Huntington's Disease Adviser
Chris Platt worked for many years as a genetic counsellor before joining the Huntington’s Disease Association as an Specialist Huntington's Disease Adviser.
Week four
Topic: Coping with guilt and family wellbeing
Date: Friday 01 May, 10:00am - 11:30am
Speaker: Dr Sarah Gunn, Clinical Psychologist
Sarah Gunn is a Clinical Psychologist and co-lead for the Leicestershire Huntington's disease Network. She has offered a huge amount of support to the community through programmes such as her Acceptance and Commitment Therapy courses.
Week five
Topic: Safeguarding futures and finances
Date: Friday 08 May, 10:00am - 11:30am
Speaker: Steve and Melanie Parsons - Safe Guarding futures.
This is an opportunity to discuss finances and planning ahead. Questions can concern mortgages, insurances, and future finances, etc.