The HDYES summer residential, open to anyone aged 8-17 affected by Huntington's disease, will be returning in 2026, with more info coming soon. 

The Huntington’s Disease Youth Engagement Service (HDYES) is running a two day residential for children and young people affected by Huntington’s disease. This residential takes place during the summer holidays and provides a safe, supportive environment where young people can meet others with similar experiences, build confidence, and take part in professionally led outdoor activities.

Event details:

  • Dates: Monday 10 August 2026 – Wednesday 12 August 2026

  • Location: Bell Heath, Boundless Outdoors, Quantrey Lane, Stourbridge (near Birmingham)

  • Cost: Free of charge

  • Ages: 8–17 years

All accommodation, meals and activities are provided. Travel costs to and from the residential can be reimbursed.

What to expect:

The residential programme is designed to be fun, inclusive and supportive. Young people will take part in a range of outdoor activities delivered by qualified instructors, alongside group sessions facilitated by the HDYES team.

Activities include:

  • Zip wire

  • Archery

  • Abseiling

  • Team-based outdoor challenges

In addition, the HDYES team will run age-appropriate group activities designed to support peer connection, communication and shared understanding of Huntington’s disease in a safe and supportive setting.

Led by experienced professionals:

The residential is delivered by the Huntington’s Disease Youth Engagement Service (HDYES), a specialist service supporting children and young people affected by Huntington’s disease.

All activities are supervised by trained outdoor instructors and HDYES staff. Safeguarding and the wellbeing of all participants are central to the planning and delivery of the residential.

Booking information:

Bookings for the residential will open on 02 March 2026.

Further details on how to apply will be available here closer to the booking date.

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I really enjoyed the summer camp because it was really fun and I loved meeting people who understand the same situation that are similar ages to me because I have never met anyone else with Huntington's disease in their family. Being at summer camp, I believe I have made lifelong friends that I can relate to and talk to about anything that my other friends can’t understand. I would love to have camps more often.