How our youth engagement service can help you
The Huntington’s Disease Association’s Youth Engagement Service, also known as HDYES, is a service specifically designed for young people whose families are affected by Huntington’s. This confidential service is for anyone aged 8-25 living in a family affected by the disease. To use our HDYES service you don’t have to be diagnosed with, or suspected to develop Huntington’s disease. The service is for anyone who is affected in any way by the disease, including extended family! In this article, we will outline what the HDYES service can offer and how it can help you.
How can HDYES help you?
There is an array of ways that our youth service can help and the level of support we provide is completely up to you! Our services include:
- One to one and/or group support sessions
- Help with talking to school, college, benefits departments or other relevant agencies
- Help finding any additional support you may need
- Introduction to young carers projects
- A non-judgemental ear if you just want someone to talk to
Things HDYES will not do
Our youth workers are here to support you in any way you deem fit, they will not force anything upon you or be judgmental in any way. Some of the things HDYES is not here to do include:
- Lie; if we don’t know the answer, we will find out and come back to you
- Keep secrets from you about the illness and how it may affect you
- Try to take over the role of your family. We are here to support you but sometimes it will be your family or someone else you most need to talk to
How can you sign up for the service?
There are three ways that you can access our Huntington’s disease youth service.
- You can speak to your Specialist Huntington’s Disease Adviser(SHDA) and they will complete a referral and send it through to the HDYES office. You will then be contacted by our HDYES specialist youth worker who will work with you to design how you want your support to look.
- Alternatively, you can contact our HDYES directly by calling 0151 331 5444 or emailing info@hda.org.uk.
- Lastly, you can also write to us at Huntington’s Disease Association, Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool, L3 5TF. Be sure to include your contact details so we can get back to you.
We also have other services and activities for young people, including events such as our Juvenile Huntington’s Disease activity weekend, which we have won awards for. And, our young adults weekend, Decisions, Dilemmas and Discussions, which includes a number of different workshops to attend.
If you or a family member are in need of support please contact us on 0151 331 5444 or email info@hda.org.uk. We are here to give advice and support no matter what your situation, please don’t hesitate to get in touch!
If this article has inspired you to fundraise for the HDA and our youth engagement service please email fundraising@hda.org.uk or take a look at our fundraising page for more information.
The Huntington’s Disease Association’s Youth Engagement Service, also known as HDYES, is a service specifically designed for young people whose families are affected by Huntington’s. This confidential service is for anyone aged 8-25 living in a family affected by the disease. To use our HDYES service you don’t have to be diagnosed with, or suspected to develop Huntington’s disease. The service is for anyone who is affected in any way by the disease, including extended family! In this article, we will outline what the HDYES service can offer and how it can help you.
How can HDYES help you?
There is an array of ways that our youth service can help and the level of support we provide is completely up to you! Our services include:
- One to one and/or group support sessions
- Help with talking to school, college, benefits departments or other relevant agencies
- Help finding any additional support you may need
- Introduction to young carers projects
- A non-judgemental ear if you just want someone to talk to
Things HDYES will not do
Our youth workers are here to support you in any way you deem fit, they will not force anything upon you or be judgmental in any way. Some of the things HDYES is not here to do include:
- Lie; if we don’t know the answer, we will find out and come back to you
- Keep secrets from you about the illness and how it may affect you
- Try to take over the role of your family. We are here to support you but sometimes it will be your family or someone else you most need to talk to
How can you sign up for the service?
There are three ways that you can access our Huntington’s disease youth service.
- You can speak to your Specialist Huntington’s Disease Adviser(SHDA) and they will complete a referral and send it through to the HDYES office. You will then be contacted by our HDYES specialist youth worker who will work with you to design how you want your support to look.
- Alternatively, you can contact our HDYES directly by calling 0151 331 5444 or emailing info@hda.org.uk.
- Lastly, you can also write to us at Huntington’s Disease Association, Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool, L3 5TF. Be sure to include your contact details so we can get back to you.
We also have other services and activities for young people, including events such as our Juvenile Huntington’s Disease activity weekend, which we have won awards for. And, our young adults weekend, Decisions, Dilemmas and Discussions, which includes a number of different workshops to attend.
If you or a family member are in need of support please contact us on 0151 331 5444 or email info@hda.org.uk. We are here to give advice and support no matter what your situation, please don’t hesitate to get in touch!
If this article has inspired you to fundraise for the HDA and our youth engagement service please email fundraising@hda.org.uk or take a look at our fundraising page for more information.