Host a popup event
Hosted your own awareness raising or fundraising pop-u event in your local area. If you are interested in holding one, you can find out more and register below to receive our pop-up event pack.
This year's theme is Behind the Gene.
The invisible challenges and untold stories of Huntington’s disease.
Too often, people affected by Huntington's disease find themselves educating the public about their condition.
Not everyone has heard of Huntington’s disease, and that includes healthcare professionals. A staggering 85% of 150 people asked in a recent survey had to educate a doctor, nurse or healthcare professional about Huntington’s disease. This is just one of the many challenges the Huntington’s community faces. We are trying to change this.
How you can get involved
Below are some ideas that you can start to think about ahead of May and register your interest in.
Distribute factsheets
Can you help us by distributed training and awareness factsheets to healthcare settings in your local area? Last year 25 areas were covered.
Share your story
You can share quotes or videos with us or even feature in a blog. The theme is your life in a Huntington's family and what you wish others knew about Huntington's disease.
Read the stories from the Huntington's community
Behind the gene - Becky's story
Community stories, Awareness
Behind the gene - Maureen's story
Awareness, Community stories
What we do
We support adults and families
We support children and young people
