Camilla's story
We spoke to Camilla, who has used our Specialist Huntington’s Disease Advisory service. Camilla received a diagnosis of Huntington’s in 2022, but only discovered the disease ran in her family in 2017. Camilla contacted the Huntington’s Disease Association and was put in touch with Charles, one of our Specialist Advisers. “He was my saviour,” says Camilla. Charles helped her find an appropriate care home for great auntie Lonnie and even delivered training on Huntington’s to the care home staff.
“I want everyone who has Huntington’s in their family to have the same support that I’ve had. It’s a hard and lonely fight when you’re trying to deal with it on your own. Having the Huntington’s Disease Association team on your side makes such a difference.”
