HDA Information

The HDA produce a factsheet ‘Talking to Children about Huntington’s Disease’ available from our factsheets page.

The HDA has a parents' section on our website.

Disability Pregnancy and Parenthood International (DPPi)

Web: Tel: 0800 018 4730

Promotes the networking of information and experience relating to pregnancy and parenthood for disabled people through a quarterly international journal and its UK based information service.

Family Lives

Web: Tel: 0808 800 2222

Offer a helpline for parents providing information, advice, guidance and support on any aspect of parenting and family life.



Information on talking to children about HD.

Young Minds Parent Helpline


Provides advice and information to any adult concerned about a child or young persons emotional problems and behavior, up to the age of 25.

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