Palliative care

HDA Information

A booklet aimed at professionals has been produced by the HDA ‘Care in Advanced HD’ this is available from our factsheets page. Hard copies are available from Head Office free of charge.

NHS End of life care guide

NHS end of life care

A guide which may be useful for anyone who is approaching the end of their life, or people who want to plan in advance for their end of life care.

Dying Matters


Dying Matters explains that talking about death doesn’t bring death closer. It’s about planning for life. Their Information Page covers:

  • Planning ahead
  • Talking about death and dying
  • Coping with bereavement
  • Information for Carers
Photobar marathon Photobar small virgin Photobar small justgiving Photobar hdyo
Photobar small appg Photobar skydive