Useful resources and links

Use the links on the left to browse our A-Z of useful oganisations and websites that can offer support and advice to HD families and carers.

Our list of resources covers:

  • charities
  • non-commercial organisations
  • government agencies
  • government-funded initiatives
  • commercial products and services

Please note that many of the listed organisations are UK-based, so their products, services or information may not be applicable to non-UK residents.


  • The website links contained on these pages are provided for your convenience and to provide further information. They do not signify that the HDA endorses these websites.
  • The HDA has no responsibility for the content of the linked websites.
  • Your use of any information or materials on these websites is entirely at your own risk, for which the HDA shall not be liable.
  • It shall be your own responsibility to ensure that any products, services or information available through these websites meet your specific requirements.
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