Professor Sarah Tabrizi’s team at the UCL HD Centre, London are now recruiting young HD gene-positive adults and healthy controls aged 18-40 for a new Huntington’s Disease Young Adult Study (HD-YAS).

The purpose of this study is to collect MRI and clinical data from young HD gene-positive adults and healthy controls to find the earliest time point at which HD related changes can be found, and the earliest time at which therapeutic intervention could be given to prevent HD related changes and decline. There is also the option to donate cerebrospinal fluid (CSF) and a blood sample for the analysis of HD-related markers which relate to any early changes we see in the brain and functioning.

This study comprises of one visit to the National Hospital for Neurology & Neurosurgery, where all the study assessments, MRI and CSF and blood sample collection will take place. An overnight stay in a hotel will be arranged by the research team for the CSF and blood sample collection if required, and all study related expenses will be reimbursed.

If you are interested in participating and would like find out more, please click here for the HD-YAS participant information sheet.

And/or contact the HD research team for more information: Tel: 0203 108 7539.

Email: [email protected].