Get involved in research

Scientists around the world are researching ways to slow down or prevent Huntington’s disease. There are also teams investigating new treatments to help with the symptoms. This means that there are many different types of research studies that you could potentially get involved in from clinical trials to sociological studies and surveys, all to aid in helping those affected by Huntington’s disease.

If you’d like to help in the global effort to learn more about Huntington’s disease, the below research studies are currently looking for participants. Taking part in research can be a substantial commitment so it’s important to look at what’s involved.

The below research studies are available to participate in, however, they are external to the Huntington’s Disease Association and you must contact the organisers directly to inquire about participation and for additional information.

Taking part in research studies

Organ donation

Some people choose to donate their organs for use by medical science after their death in order to help others. Brain donation is of particular relevance in Huntington’s disease research. To find out how you can donate your organs visit The Human Tissue Authority's website or call them on 020 7269 1900. Please email [email protected] or call 0151 331 5444 if you have any questions or to find out more.