Scientists around the world are researching ways to slow down or prevent Huntington’s disease. There are also teams investigating new treatments to help with the symptoms.
If you’d like to help in the global effort to learn more about Huntington’s disease, these research studies are looking for participants.
Taking part in research can be a substantial commitment so it’s important to look at what’s involved.
Professor Sarah Tabrizi’s team at the UCL HD Centre, London are now recruiting young HD gene-positive adults and healthy controls aged 18-40 for a new Huntington’s Disease Young Adult Study (HD-YAS)
The Neuro LTC (long term conditions) research project aims to identify and better understand the factors and events that influence the care needs of people with long term neurological conditions, including Huntington’s disease.
Enroll-HD is a study which aims to accelerate the development of therapies for HD by collecting more uniform clinical data and biological samples to better understand the natural history of HD.
HD-CSF is an observational study with the main purpose of collecting and studying cerebrospinal fluid (CSF), the fluid that surrounds the brain and spinal cord, to help better understand what happens in the brains of people with HD.
We plan to develop this area of the website over time with more information about some of the latest research into Huntington’s, what scientists think might be possible in future and what it’s like to take part in a study - so watch this space for updates.
In the meantime, if you have any questions about research or taking part in a study, and would like to discuss this, or if you would like more information or independent expert advice, please contact Enroll-HD.