In a collaborative project we have developed a new service model that aims to improve care and support for people with Huntington’s disease. The new model – shaped using feedback from Huntington’s disease patients, their carers and families – seeks to build on existing services, overcome barriers to care and provide additional support for people living with Huntington’s disease.
The project involved Surrey Heartlands, Kent Surrey Sussex Academic Health Science Network (KSS AHSN), Roche Products Ltd, and the Huntington’s Disease Association (HDA) who sought to develop a fit-for-purpose service model that ensured provision of consistent, equitable care. It took a co-production/co-design approach, with stakeholders from project partners, St George’s Hospital, local health and social care staff, patients, families and carers.
Co-production of a proposed new service model for patients in Surrey Heartlands Health and Care Partnership.
Download the co production of a new service model summary report.