Best practice in Huntington’s disease

There’s a lot of excellent guidance available for professionals working with people with Huntington’s disease and their families. You’ll find some useful best practice guides in the downloads on this page.

If you don’t find what you’re looking for on this page, get in touch – we’re here to help.

General information for all professionals

That makes sense now: Decoding the symptoms of Huntington’s disease

Huntington's disease quick reference guide


A Guide to Huntington's Disease for GPs and Primary Health Care Teams


The European Huntington Association holds a wide range of up to date information for Physiotherapists who are working with people with Huntington’s. Their key document for physiotherapists is their Physiotherapy Clinical Guidelines.

Occupational therapists

Occupational Therapy for people with HD: Best Practice Guidelines

OT Clinical Tips for HD - Seating and Posture

OT Clinical Tips for HD - Self-care

OT Clinical Tips for HD - Community

OT Clinical Tips for HD - Domestic Skills

OT Clinical Tips for HD - Eating and Drinking

OT Clinical Tips for HD - End stage and Palliative care

OT Clinical tips for HD - Sleep routine and Management

OT clinical tips for HD - Social and Leisure

OT Clinical Tips for HD - Work

Speech and language therapists

Management of speech, language and communication difficulties in HD

Oral feeding in HD: a guide for speech and language therapists


Nutritional management of individuals with HD

Professionals working in palliative care

Care in Advanced HD