There’s a lot of excellent guidance available for professionals working with people with Huntington’s disease and their families. You’ll find some useful best practice guides in the downloads on this page.
If you don’t find what you’re looking for on this page, get in touch – we’re here to help.
That makes sense now: Decoding the symptoms of Huntington’s disease
Huntington's disease quick reference guide
A Guide to Huntington's Disease for GPs and Primary Health Care Teams
The European Huntington Association holds a wide range of up to date information for Physiotherapists who are working with people with Huntington’s. Their key document for physiotherapists is their Physiotherapy Clinical Guidelines.
Occupational Therapy for people with HD: Best Practice Guidelines
OT Clinical Tips for HD - Seating and Posture
OT Clinical Tips for HD - Self-care
OT Clinical Tips for HD - Community
OT Clinical Tips for HD - Domestic Skills
OT Clinical Tips for HD - Eating and Drinking
OT Clinical Tips for HD - End stage and Palliative care
OT Clinical tips for HD - Sleep routine and Management
OT clinical tips for HD - Social and Leisure
OT Clinical Tips for HD - Work
Management of speech, language and communication difficulties in HD
Oral feeding in HD: a guide for speech and language therapists
Nutritional management of individuals with HD