New Website  Banner images (7)

Our response to the Health and Disability White Paper

16 March 2023

Read more

Spring budget 2

The Spring Budget

15 March 2023

Read more

mentalhealth2

Access to mental health - your opinion

14 March 2023

Read more

pREDECTIVE TEST2

Rare diseases action plan

06 March 2023

Read more

M4RD conference - All consent - 2023

Rare disease in every day medicine

02 March 2023

Read more

News Articles  Website Banners  2022 (47)

Additional households can now apply for £400 payments towards energy bills

02 March 2023

Read more

News Articles  Website Banners  2022 (70)

Predictive Testing and Clinical Trial Results

01 March 2023

Read more

Screenshot 2023-04-05 181207

International Rare Disease Day

28 February 2023

Read more

Rare Disease Report

Rare Disease Report

28 February 2023

Read more

News Articles  Website Banners  2022 (45)

Jingle Jam raised over £240,000 for the Huntington Disease Association

15 February 2023

Read more

News Articles  Website Banners  2022 (44)

Roche to begin recruiting for Phase II of the GENERATION HD2 study

15 February 2023

Read more

News Articles  Website Banners  2022 (35)

Gloucestershire Huntington's disease project group

15 February 2023

Read more

Untitled design (88)

What did last year's awareness month campaign achieve?

15 February 2023

Read more

News Articles  Website Banners  2022 (43)

“When you hear the sound of hooves, think horses, not zebras.”

15 February 2023

Read more

News Articles  Website Banners  2022 (42)

New clinical pathway has been published for adults with movement disorders

15 February 2023

Read more