Talking to Children About Genetic Conditions: Survey Reminder
The research project “Talking to Children about inherited genetic conditions” launched on 1st September 2013. The project works collaboratively with families (parents, children and young people) with genetic conditions to develop an intervention that will support families to communicate more effectively with their children (<18 years) about the genetic condition affecting their family.
On 1st February 2014 the research team released a survey to find out if and how families talk about their genetic condition with their children. The survey also presents four different research projects that the research team would like to undertake in the future and invites families to provide feedback and or express interest in taking part in these studies. Thank you for all those families that have already taken part. If you would like to take part in the survey please click here
Alternatively, you may contact Emma Rowland: emma.rowland@kcl.ac.uk or 0207 848 3650 for a hard copy.
The research project “Talking to Children about inherited genetic conditions” launched on 1st September 2013. The project works collaboratively with families (parents, children and young people) with genetic conditions to develop an intervention that will support families to communicate more effectively with their children (<18 years) about the genetic condition affecting their family.
On 1st February 2014 the research team released a survey to find out if and how families talk about their genetic condition with their children. The survey also presents four different research projects that the research team would like to undertake in the future and invites families to provide feedback and or express interest in taking part in these studies. Thank you for all those families that have already taken part. If you would like to take part in the survey please click here
Alternatively, you may contact Emma Rowland: emma.rowland@kcl.ac.uk or 0207 848 3650 for a hard copy.