JHD weekend 2019 - The lowdown!
Our Juvenile Huntington’s Disease weekend is always one of the most popular events of the year with 44 attendees including children affected by Juvenile Huntington’s Disease, their families and carers. Taking place at the Calvert Trust in the Lake District, the weekend intends to give young people with JHD and their families an opportunity to meet other people in a similar situation, while also enjoying a great weekend full of exciting activities. It’s also a chance for families to find out more about JHD from healthcare professionals with expertise in Huntington’s disease, and by sharing experiences with other parents.
A note from Helen Santini, event organiser.
“As usual, the Calvert Trust organised a great mix of activities including horse riding, canoeing, zip wire, rock’n’rope, abseiling and swimming. The parents took part in separate sessions to enable them to meet and share, including a session with Hugh Rickards (neuropsychiatrist), a craft session and sailing.
On the Friday night after people had arrived and settled in, they had the chance to relax or take an evening walk led by the Calvert Trust – the wet weather didn’t dampen spirits and lots of the group still got out! On the Saturday evening, we had a circus skills workshop, a Disney-themed party and movie night.
A huge big thank you to the families who came, to the Calvert Trust who do such a great job, and to all those who volunteered to help at the weekend. Everyone gives so much, all in their own ways.” – Helen Santini
The weekend is very popular so we would encourage anyone interested in attending to get their booking form in early! If you are interested in the weekend or would just like to find out a bit more, do not hesitate to contact Helen Santini on helen.santini@hda.org.uk.
Our Juvenile Huntington’s Disease weekend is always one of the most popular events of the year with 44 attendees including children affected by Juvenile Huntington’s Disease, their families and carers. Taking place at the Calvert Trust in the Lake District, the weekend intends to give young people with JHD and their families an opportunity to meet other people in a similar situation, while also enjoying a great weekend full of exciting activities. It’s also a chance for families to find out more about JHD from healthcare professionals with expertise in Huntington’s disease, and by sharing experiences with other parents.
A note from Helen Santini, event organiser.
“As usual, the Calvert Trust organised a great mix of activities including horse riding, canoeing, zip wire, rock’n’rope, abseiling and swimming. The parents took part in separate sessions to enable them to meet and share, including a session with Hugh Rickards (neuropsychiatrist), a craft session and sailing.
On the Friday night after people had arrived and settled in, they had the chance to relax or take an evening walk led by the Calvert Trust – the wet weather didn’t dampen spirits and lots of the group still got out! On the Saturday evening, we had a circus skills workshop, a Disney-themed party and movie night.
A huge big thank you to the families who came, to the Calvert Trust who do such a great job, and to all those who volunteered to help at the weekend. Everyone gives so much, all in their own ways.” – Helen Santini
The weekend is very popular so we would encourage anyone interested in attending to get their booking form in early! If you are interested in the weekend or would just like to find out a bit more, do not hesitate to contact Helen Santini on helen.santini@hda.org.uk.
Posted On
21 Jun 2019
Category
Category
Juvenile Huntington's Disease Young people The HDA EventsShare