Harry needs a hug: A story for children learning to deal with Huntington’s Disease
Campaign For My Brain have released a brand new book that helps children understand how to deal with Huntington’s disease in an easy to understand and sensitive way.
Campaign For My Brain was founded by Emma Terranova in 2018 to raise awareness of Huntington’s disease and other neurological disorders. Emma’s family are affected by Huntington’s disease, with her mother and grandmother both inheriting the disease. Campaign For My Brain said,
“We recognise the stigma, isolation, discrimination, and exclusion that sufferers and carers can continually feel. We also know the battle is constant, the battle for getting the care that is rightly due and needed. Along with educating and raising awareness, Campaign For My Brain will be running future projects aimed at making a change to the systems that define what care is needed.”
That is why they’ve created this extremely helpful and informative book for children to help them understand what living in a family affected by Huntington’s disease means. The blurb of the book reads,
‘Harry is a little boy, who has a best friend called Betty. One day, the doctors tell his Daddy that he has something called ‘Huntington’s disease’ (HD). Harry talks to his best friend Betty, who helps him to understand HD and supports him through his worries.’
If you are living with Huntington’s disease and are looking for a gentle way to introduce the disease to your children and family, you can purchase ‘Harry needs a hug: A story for children learning to deal with Huntington’s Disease’ from Amazon. If you haven’t already, make sure to sign up to Amazon Smile and set the Huntington’s Disease Association as your charity to purchase the book as Amazon will donate 0.5% of the net purchase price to us! Click here to find instructions on how Amazon Smile works.
If you are affected by Huntington’s disease and need support or advice, please contact us on 0151 331 5444 or email info@hda.org.uk.
Campaign For My Brain have released a brand new book that helps children understand how to deal with Huntington’s disease in an easy to understand and sensitive way.
Campaign For My Brain was founded by Emma Terranova in 2018 to raise awareness of Huntington’s disease and other neurological disorders. Emma’s family are affected by Huntington’s disease, with her mother and grandmother both inheriting the disease. Campaign For My Brain said,
“We recognise the stigma, isolation, discrimination, and exclusion that sufferers and carers can continually feel. We also know the battle is constant, the battle for getting the care that is rightly due and needed. Along with educating and raising awareness, Campaign For My Brain will be running future projects aimed at making a change to the systems that define what care is needed.”
That is why they’ve created this extremely helpful and informative book for children to help them understand what living in a family affected by Huntington’s disease means. The blurb of the book reads,
‘Harry is a little boy, who has a best friend called Betty. One day, the doctors tell his Daddy that he has something called ‘Huntington’s disease’ (HD). Harry talks to his best friend Betty, who helps him to understand HD and supports him through his worries.’
If you are living with Huntington’s disease and are looking for a gentle way to introduce the disease to your children and family, you can purchase ‘Harry needs a hug: A story for children learning to deal with Huntington’s Disease’ from Amazon. If you haven’t already, make sure to sign up to Amazon Smile and set the Huntington’s Disease Association as your charity to purchase the book as Amazon will donate 0.5% of the net purchase price to us! Click here to find instructions on how Amazon Smile works.
If you are affected by Huntington’s disease and need support or advice, please contact us on 0151 331 5444 or email info@hda.org.uk.
Posted On
24 Aug 2020
Category
Category
Awareness Young people Juvenile Huntington's Disease CarersShare