EHDN standard of care in clinical management of HD published
The European Huntington’s Disease Networks (EHDN) Standards of Care Working Group are delighted to announce the publication of a special edition issue of the Journal of Neurodegenerative Disease Management focusing on Standards of Care for the clinical management of HD. This unique collection of guidance documents on the management of Swallow, Communication, Nutrition, Dental Care, Physiotherapy and Occupational Therapy in Huntington’s disease (HD) comprises:
Foreword
A standard of care for Huntington’s disease: who, what and why
Editorial
A standard of care for Huntington’s disease: a patient and family perspective
Special Reports
- Development of physiotherapy guidance and treatment-based classifications for people with Huntington’s disease
- Physiotherapy clinical guidelines for Huntington’s disease
- Nutritional management of individuals with Huntington’s disease: nutritional guidelines
- Oral feeding in Huntington’s disease: a guideline document for speech and language therapists
- Management of speech, language and communication difficulties in Huntington’s disease
- Guideline for oral healthcare of adults with Huntington’s disease
- Development of guidelines for occupational therapy in Huntington’s disease
The Standards of Care Working Group is one of a number of working groups that have been formed to encourage new collaborative work in the care of HD with the aim of developing evidence based guidelines for best practice. This working group comprises over one hundred clinicians and allied health professionals from various disciplines, such as dietitians, dentists and speech and language therapists both from Europe and the USA. All contributed their wealth of expertise and knowledge gained through working with HD patients and their families.
This collection address fundamental aspects of the clinical management of Huntington’s disease (HD), focusing on non-therapeutic interventions in order to promote uniformity and standardisation of care internationally. Ultimately it aims to add to the current knowledge on management of HD and would allow practitioners to make informed decisions regarding best patient care.
Please follow the link for open access to this series of articles which is kindly supported by CHDI Foundation: A standard of care for Huntington’s disease
Daniela Rae and Sheila Simpson, Lead EHDN Standards of Care Working Group
The European Huntington’s Disease Networks (EHDN) Standards of Care Working Group are delighted to announce the publication of a special edition issue of the Journal of Neurodegenerative Disease Management focusing on Standards of Care for the clinical management of HD. This unique collection of guidance documents on the management of Swallow, Communication, Nutrition, Dental Care, Physiotherapy and Occupational Therapy in Huntington’s disease (HD) comprises:
Foreword
A standard of care for Huntington’s disease: who, what and why
Editorial
A standard of care for Huntington’s disease: a patient and family perspective
Special Reports
- Development of physiotherapy guidance and treatment-based classifications for people with Huntington’s disease
- Physiotherapy clinical guidelines for Huntington’s disease
- Nutritional management of individuals with Huntington’s disease: nutritional guidelines
- Oral feeding in Huntington’s disease: a guideline document for speech and language therapists
- Management of speech, language and communication difficulties in Huntington’s disease
- Guideline for oral healthcare of adults with Huntington’s disease
- Development of guidelines for occupational therapy in Huntington’s disease
The Standards of Care Working Group is one of a number of working groups that have been formed to encourage new collaborative work in the care of HD with the aim of developing evidence based guidelines for best practice. This working group comprises over one hundred clinicians and allied health professionals from various disciplines, such as dietitians, dentists and speech and language therapists both from Europe and the USA. All contributed their wealth of expertise and knowledge gained through working with HD patients and their families.
This collection address fundamental aspects of the clinical management of Huntington’s disease (HD), focusing on non-therapeutic interventions in order to promote uniformity and standardisation of care internationally. Ultimately it aims to add to the current knowledge on management of HD and would allow practitioners to make informed decisions regarding best patient care.
Please follow the link for open access to this series of articles which is kindly supported by CHDI Foundation: A standard of care for Huntington’s disease
Daniela Rae and Sheila Simpson, Lead EHDN Standards of Care Working Group