Awareness month success 2019
This year we extended our awareness week to a full month! This gave us a real opportunity to try to raise the profile of Huntington’s with the help of our wonderful supporters. Buildings and houses lit up across the world as part of the international #LightItUp4HD campaign which also drummed up some local press interest. There were multiple carer events run by our Specialist Huntington’s disease Advisers, the Carer's guide was launched and our in-depth Understanding Huntington’s disease course for professionals took place. There were also lots of stories and perspectives shared on our social media channels and website.
#LightItUp4HD
Huntington's disease charities and organisations across the UK and the rest of the world joined forces throughout May to light up buildings and landmarks to raise awareness of Huntington’s disease. People even lit up their own homes with the help of our #LightItUp4HD packs! Take a look at some amazing light ups below!
Awareness events
Supporters across the country held their own Huntington’s disease awareness month events to help bring Huntington’s disease out of the shadows. All around the UK, people were invited to tea parties, bake sales, information events and raffles in both support of our work and to bring knowledge of Huntington’s to those that may never have heard of it before.
Shine a light online
During May we used our social media channels to share stories of those affected by Huntington’s and posted infographics to help people learn more about Huntington’s. Our supporters added Twibbon frames, digital frames that have the Huntington’s Disease Association’s logo and Awareness Month written on them, to their social media profile pictures and lit up digital stars in the sky to remember their loved ones via VisuFund. We succeeded in getting several online news articles published relating to #LightItUp4HD campaign while writing blog articles on our website that helped raise awareness of Huntington’s disease.
Spotlight on carers
Our specialist advisers spent time throughout the month delivering training to care professionals. They organised peer support events for family carers and handed out our brand new Carer’s guide.
If you are affected by Huntington's disease and are looking for support please contact us on 0151 331 5444.
This year we extended our awareness week to a full month! This gave us a real opportunity to try to raise the profile of Huntington’s with the help of our wonderful supporters. Buildings and houses lit up across the world as part of the international #LightItUp4HD campaign which also drummed up some local press interest. There were multiple carer events run by our Specialist Huntington’s disease Advisers, the Carer's guide was launched and our in-depth Understanding Huntington’s disease course for professionals took place. There were also lots of stories and perspectives shared on our social media channels and website.
#LightItUp4HD
Huntington's disease charities and organisations across the UK and the rest of the world joined forces throughout May to light up buildings and landmarks to raise awareness of Huntington’s disease. People even lit up their own homes with the help of our #LightItUp4HD packs! Take a look at some amazing light ups below!
Awareness events
Supporters across the country held their own Huntington’s disease awareness month events to help bring Huntington’s disease out of the shadows. All around the UK, people were invited to tea parties, bake sales, information events and raffles in both support of our work and to bring knowledge of Huntington’s to those that may never have heard of it before.
Shine a light online
During May we used our social media channels to share stories of those affected by Huntington’s and posted infographics to help people learn more about Huntington’s. Our supporters added Twibbon frames, digital frames that have the Huntington’s Disease Association’s logo and Awareness Month written on them, to their social media profile pictures and lit up digital stars in the sky to remember their loved ones via VisuFund. We succeeded in getting several online news articles published relating to #LightItUp4HD campaign while writing blog articles on our website that helped raise awareness of Huntington’s disease.
Spotlight on carers
Our specialist advisers spent time throughout the month delivering training to care professionals. They organised peer support events for family carers and handed out our brand new Carer’s guide.
If you are affected by Huntington's disease and are looking for support please contact us on 0151 331 5444.