Middle stages of Huntington’s: what to expect

Symptoms of the middle stage of the illness often revolve around changes in muscles and movement, although changes in behaviour may also become more significant and challenging too.

  • Your muscles are likely to start making involuntary contractions and become stiff and rigid.
  • This will cause your movements to slow down and your arms and legs may become clumsy.
  • You may start to experience changes in how you speak as forming words becomes more tricky. Speech therapy and certain equipment can help a lot with this.
  • It may become difficult for you to swallow, making eating difficult. Support from a dietician can help to make sure they keep their weight up.
  • Your behaviour may change as feelings of anger, frustration or depression become quite intense. This can be quite challenging for you and those around you. It doesn’t happen to everyone but it’s more likely to happen if you start to develop symptoms in your teens.

Everyone’s journey through Huntington’s is unique. You may not experience all these symptoms, or may experience different ones or experience them at different stages. This means your care will need to be tailored to your specific needs and to change and evolve as you do.

The right support at every stage can make a big difference, and we’re here to help.