It can be difficult to talk to people about Huntington’s disease. It’s a rare illness so most people haven’t heard of it and won’t know the symptoms or understand what it means for the future. You may be the first person who has ever talked to them about it.
It’s helpful to have people you can have honest conversations with, to share your worries and talk openly about what you are dealing with. It’s also helpful to have friends both within, and outside of, the experience of living with Huntington’s.
If you are finding it difficult to talk about Huntington’s, you might find it helpful to talk to people who are in a similar situation as you. There are many sources of support such as online communities, message boards, events and local HDA branches.
Friends and family are also always welcome to contact us for general information about Huntington’s disease. We’re here to help so if you don’t find what you are looking for, contact us.