It can be difficult to tell people about being at risk of Huntington’s disease. Most people haven’t heard of it and won’t understand what it means for the future. It’s helpful to have people you can have honest conversations with, so you can share your worries and talk openly about what you are dealing with.
You may be worried about forming relationships, especially with a potential partner. You may wonder about when you would raise the issue of Huntington’s, how you would tell someone about it, and how they would react. Or you might feel concerned about the future – that you might become a burden to the person you love.
If you are finding it difficult to talk about Huntington’s, you might find it helpful to talk to people who are in a similar situation as you. There are many sources of support such as online communities, message boards, events and local HDA branches.
Friends and family are also always welcome to contact us for general information about Huntington’s disease. We’re here to help so if you don’t find what you are looking for, contact us.