If you are caring for someone with Huntington’s, you may find your energy and mood low sometimes. It can help greatly if you are able to make time for activities that help you feel better, physically and mentally, such as exercise and hobbies or even seeing friends.
Depending on the stage of the illness, sometimes you might also be able to enjoy an activity together with the person you are caring for. Take a look at Getting the most out of life with Huntington’s for more information and ideas about this.
Many local authorities offer leisure cards which can help reduce the cost of activities you might like to do when you get a break from caring.
They're often available to people claiming benefits such as Carer's Allowance. They do vary between areas, but there's a good chance you'll qualify if you're a carer with a low income. There may be a small annual charge for the card, from £1 up to around £15. Discount leisure cards can give you discounts of between 10 and 50% on facilities such as local leisure centres, cinemas and theatres.
There’s more information available on the NHS website, including a section on accessible activities, breaks and day trips.
Concessions are available at many venues to a carer accompanying someone with Huntington’s, for example free cinema or event tickets . Always ask at the time of booking if any concessions apply and mention any special needs such as wheelchair access.
The government services and information website Gov.uk has information about travelling on all different forms of transport for people with disabilities. It includes information on financial savings such as motability scheme (which can help with leasing a car), blue badges and railcards; it also offers advice on getting practical support at train stations / airports etc. You can also find information on these in Getting the most out of life with Huntington’s.
If you can’t find what you are looking for, contact us and we’ll try and help.