Across England and Wales there are thousands of people caring for people with Huntington’s, and trying to cope with the challenge of this role and the changing nature of the relationship they have with that person.

Caring for someone with Huntington’s can be incredibly difficult emotionally. What sets it apart from many other illnesses is its genetic nature; carers may have cared for others in their family with the same disease, and may even be at risk themselves.

You may need a range of emotional support to keep you going.

This could include:

• Friends and family (see Talking to others about Huntington’s)
• Online communities, message boards and forums for carers, as well as for those living with Huntington’s
• Local Huntington’s Disease Association branches, groups and events for those affected by Huntington’s
• Expert support, for example our Specialist Huntington’s Disease Advisers (SHDAs), who are there to support you and the person you care for both emotionally and practically
• Telephone support, such as Carers UK’s adviceline
• Talking therapies such as counselling
• Taking a break from caring - either regularly (e.g. using a day centre two or three times a week) or for a longer break, perhaps once or twice a year.

For more information about some ways to access these services, as well as other sources of practical support, see Support for carers.

Caring for someone with Huntington’s can be very challenging. Getting the right information and support is vital, so if you don’t find what you are looking for, get in touch. We’re here to help.