Caring for someone with Juvenile Huntington’s can have an impact on your finances, which can feel stressful at times. It may become increasingly difficult for the young person affected, and members of their family who look after them, to work or study. Meeting their care needs can sometimes be costly, too.
There are different forms of financial help available to people living in England and Wales, from the Department of Work and Pensions (DWP), your local council and other sources. It’s important to access all the help you’re entitled to.
As a parent carer of a disabled child, you can claim benefits on behalf of your child, as they are your dependent.
Every family’s circumstances is different, so it’s a good idea to get detailed advice from an expert benefits advisor to calculate your and your full benefits entitlement. Your local Citizens Advice bureau or Law Centre can often help with this. They can also help with filling in forms and can contact the DWP for you if necessary.
A wide range of grants are available, depending on your specific needs and situation.
While coping with Juvenile Huntington’s can be expensive at times, there are lots of different sources of help available. It’s important to make sure you get all the support that you’re entitled to.
HDA’s specialist adviser on Juvenile Huntington’s, Helen Santini, is happy to help answer any questions you have about financial matters relating to Juvenile Huntington’s. You can reach her on firstname.lastname@example.org or 01279 507656.