Because Juvenile Huntington’s is such a rare condition, living with it can feel quite isolating. At times, it can also be difficult to cope with all the changes it brings about. Many children and young people with Huntington’s and their families get a tremendous boost from interacting with others affected by the disease.
There are various ways you can get support and connect with other people in a similar situation to you:
If you have any questions about how to get emotional support for yourself or a member of your family, please contact us.