Facing the death of a loved one is always extremely difficult - even more so when it’s a child or young person.
Not only is this an extremely emotional time, but you may find that the symptoms your child is experiencing change and may become harder to cope with. (You can read more about symptoms in Later stages of Juvenile Huntington’s: what to expect).
If you can’t find the information or help you need, please contact us. We’re here to help.