If you are supporting or caring for someone affected by Huntington's disease and you need information, support and advice, our advisers are available to speak with you from 9 am - 5 pm, Monday to Friday. Please contact us on 0151 331 5444 or email [email protected]
Whilst our formal in-person training sessions have halted temporarily due to social distancing measures, we are able to provide training 'remotely'. Take a look at our events pages for details of upcoming virtual training and webinars. Our webinars are recorded and stored on our information resources page if you prefer to access these in your own time. Alternatively give us a call to find out more about the bespoke training we can offer.
If you are caring for someone affected by Huntington’s disease, please make sure you read our social distancing and self-isolating pages if you experience COVID-19 symptoms for up to date guidance on what you should do in line with government guidance and support the person you care for in shielding themselves if the NHS has recommended they do so.
You can also find more in-depth information on COVID-19 and caring via our ‘Tips for carers on protecting those with Huntington's from COVID-19’ infographic.
If the person you support / care for is still going to the shops, they may find our letter for supermarkets and retail staff helpful. The letter explains more about Huntington's and its effects to those who may not understand the disease.
To help NHS staff and emergency services better understand Huntington's disease and how COVID-19 can affect someone with Huntington's, we have produced a 'COVID-19 letter for NHS and emergency services.'
There are lots of official resources where you can access additional advice: