Charity operations during COVID-19 pandemic

Telephone helpline

We remain committed to supporting families affected by Huntington's disease and the professionals involved in their care and support. Our telephone helpline is open 9 am – 5pm for support, information and advice.


Face to face visits

As many people with Huntington’s disease are considered in the vulnerable category, for their protection, our Specialist Huntington's disease Advisers have postponed most house calls and in-person visits. This is to try and minimise the risk to people affected by Huntington’s. You can still access our specialist advisers via phone and other online communications. We are here to support anyone affected by Huntington’s disease and will continue to do so.


Training and support events

There will be no face to face training sessions delivered at this time, instead training will be offered via Zoom.

We have begun a programme of informative and interactive webinars on a number of topics. Webinar times and joining details will be advertised on social media in advance of the sessions and on our events pages. Webinar recordings can be found on our information resources page after the event.


Fundraising events

As the leading organisation across England and Wales supporting people affected by Huntington’s disease our work continues – we will continue to support people with Huntington’s disease and we ask our fundraisers to continue to show your support by organising fundraising activities in line with current government COVID-19 safety guidance. Please get in touch with our fundraising team to discuss ways in which you can fundraise for our work on 0151 331 5445 or [email protected]. We are hugely grateful for your all you do and your support is more vital to us than ever before in the current climate.



The impact of COVID-19 has led to us changing the way we work; something we are proud to say the Huntington’s Disease Association has risen to well. 

We are working hard to provide one-to-one support to anyone affected by Huntington’s disease. If you need information, advice or support about Huntington's disease or the effects of COVID-19 on Huntington's please call our advisory service on 0151 331 5444 or email [email protected] with your query. Don’t forget you can also access support from our message board.