West Midlands branch

We are the West Midlands Branch of the Huntington’s Disease Association. We have been offering support and advice for over 40 years to local people affected by Huntington’s disease. We have regular support meetings which are very informal and welcoming. We also invite health and social care professionals to our meetings to give talks about various topics around Huntington’s disease. We welcome the local Specialist Huntington’s Disease Advisor to our meetings. The meeting offers the opportunity where people can share tips and ideas of how to deal with issues, they may be facing with their loved ones in a safe kind environment.

We are a volunteer-led group and we welcome anyone affected by Huntington’s disease in our area to our meetings. We organise events and social activities to fundraise for HDA and promote awareness of Huntington’s disease. This includes visits to local attractions, organising walks and other events.

We also have a Welfare Fund that provides limited emergency help to HD families in our area.

Where we meet

Usually at a venue in Birmingham city centre. Occasionally, we substitute these for meetings online or we offer a different activity such as a Garden party. However, we always give advance notice via email as to venue and time.

When we meet

We aim to hold face to face support meetings 6 times a year on Saturdays when circumstances permit.

Key contact

The secretary is Paula Aubrey who is contactable on [email protected]

Specialist Huntington's Adviser

Poppy Hill

0121 426 1015

[email protected]