We are the West Midlands Branch of the Huntington’s Disease Association. We have been offering support and advice for over 40 years to local people affected by Huntington’s disease. We have regular support meetings which are very informal and welcoming. We also invite health and social care professionals to our meetings to give talks about various topics around Huntington’s disease. We welcome the local Specialist Huntington’s Disease Advisor to our meetings. The meeting offers the opportunity where people can share tips and ideas of how to deal with issues, they may be facing with their loved ones in a safe kind environment.
We are a volunteer-led group and we welcome anyone affected by Huntington’s disease in our area to our meetings. We organise events and social activities to fundraise for HDA and promote awareness of Huntington’s disease. This includes visits to local attractions, organising walks and other events.
We also have a Welfare Fund that provides limited emergency help to HD families in our area.