We are newly formed support group looking to support anyone with a connection to Huntington’s Disease in the South of Staffordshire and surrounding areas. We held our first meeting on 20 March 2022.
The group was set up by four ladies who have different connections to the disease. We meet every six weeks on a Sunday afternoon for an informal cuppa and cake. The meetings offer all the opportunity to share new information and tips on how they have resolved issues they have faced.
We also have 'suggestions’ box to enable attendees to identify topics they would like further information on. This information will be sought between meetings and shared at the next meeting. Health and Social Care professionals will also be invited to future meetings to provide talks on specific topics identified.
Alongside the six weekly support groups we will also be holding fundraising and social events to enable those affected by Huntington’s disease to socialise in a safe and friendly environment.