North Staffordshire branch

The North Staffs Branch of the Huntington’s Disease Association was established in 1993 by volunteers who all had a link with Huntington’s disease. One of the founder members, Sue Tams, continues to be our Chair and other founder members remain active members of the group.

The group strives to help local families across Stoke-on-Trent and North Staffordshire affected in some way by Huntington's disease.

In addition to offering support and sharing our knowledge gained through experience of the condition, Sue Tams is also very active within the local health economy helping ensuring that Huntington's disease is considered at meetings to do with such things as reforming and commissioning mental health services.

Where we meet

Hanley Community Fire Station
Lower Bethesda Street
(Close to Hanley Bus Station)

Please feel free to join us. The meetings are free and there is free car parking, including disabled parking, at the Fire Station.

If you would like to contact either Sue or Glenys we will ensure that someone is at the door to welcome you.

When we meet

We meet on the third Wednesday of every month from 7:30 to 9 pm.

Key contact

Chair: Sue Tams – 01782 642905  

Secretary: Glenys White – 07854735846

Branch email address: [email protected]

Specialist Huntington's Adviser


0151 331 5444

[email protected]