The North Staffs Branch of the Huntington’s Disease Association was established in 1993 by volunteers who all had a link with Huntington’s disease. One of the founder members, Sue Tams, continues to be our Chair and other founder members remain active members of the group.

The group strives to help local families across Stoke-on-Trent and North Staffordshire affected in some way by Huntington's disease.

In addition to offering support and sharing our knowledge gained through experience of the condition, Sue Tams is also very active within the local health economy helping ensuring that Huntington's disease is considered at meetings to do with such things as reforming and commissioning mental health services.