Founded 20 years ago, it has had various locations, but we've been at The Talbot for a long time now.

We meet for monthly Sunday pub lunches, these are informal meet ups for people with Huntington's disease and their families.

There are people from Milton Keynes, Bedford and Luton areas attending and about 35 people in the group, normally 10 – 15 attend each month. 

It’s very informal and you don’t have to get lunch, you can just come for a coffee/drink if you want.